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Recorded Session
Recorded Session
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Livestreamed Session
Session is Ticketed (Add-on Session through Registration)
Session is Ticketed (Add-on Session through Registration)
Food Available for Session Attendees
Food Available for Session Attendees
Session includes an in person invitee/speaker with CF
Session includes an in person invitee/speaker with CF

Discipline Group Session

NRS

SW/PSYCH

DG06-- The Invisible Load: Caregiver & Self-Care Fatigue in CF

Thursday, October 8, 2026
7:45 AM - 9:45 AM EDT
Session includes an in person invitee/speaker with CF Food Available for Session Attendees
Living with a chronic illness affects both physical and psychological well-being and can contribute to significant self-care fatigue and caregiver burnout. This session will explore the emotional and mental health challenges experienced by people with cystic fibrosis (pwCF) and their caregivers, with an emphasis on understanding the daily and cumulative impact of chronic disease management.

A panel discussion featuring two individuals with CF and two parents of pwCF, will provide firsthand perspectives on the time, energy, and emotional burden required to manage the disease. By hearing these real-world experiences, clinicians, caregivers, and care team members will gain a deeper appreciation for the challenges patients and families face while balancing treatment recommendations with quality of life, and gain insight on what is most supportive to them throughout their journeys.

While adherence to recommended therapies remains essential, it is equally important to recognize the cumulative burden these responsibilities place on patients and caregivers. This session will also highlight practical coping strategies, approaches to minimizing burnout, and ways to foster resilience and identify positive aspects of living with and caring for someone with a chronic illness.